Anushca Lissen Trust

 

 

"Let the little children come to Me, and do not hinder them, for the kingdom of heaven belongs to such as these."  -  Matt 19:14

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About Lissencephaly

What is Lissencephaly?

Lissencephaly, which literally means smooth brain, is a rare brain formation disorder caused by defective neuronal migration during the 12th to 24th weeks of gestation resulting in a lack of development of brain folds (gyri) and grooves (sulci).[1] It is a form of cephalic disorder. Terms such as 'agyria' (no gyri) or 'pachygyria' (broad gyri) are used to describe the appearance of the surface of the brain. Children with lissencephaly generally have significant developmental delays, but these vary greatly from child to child depending on the degree of brain malformation and seizure control. Life expectancy can be shortened, generally due to respiratory problems.

Day Care Centre

Our new vision?

We have just launched the concept of our Day Care.  We are currently busy with all the paper work

and registrations.

 

The Day Care Centre initiative started with people who followed Anushca's journey very closely. Mommies of children who have a Neurological Syndrome to find the right day care.  We have found in research that there is only 6 children in the whole of South Africa who have Lissencephaly.

 

We also found that there are children who have Microcephaly (The disorder may stem from a wide variety of conditions that cause abnormal growth of the brain, or from syndromes associated with chromosomal abnormalities).  For this reason we have decided to start a Centre for children with Neurological Syndromes.

 

 

 

In this Day care we will have Sister, which is a professional trained ICU Sister with her medical team who will look with good care after the children.

 

The centre will cater for the following:

-  Physiotherapy

-  Occupational Therapy

-  Masaring Therapy

-  Water Therapy

 

Please follow our Facebook page for more info.  We will keep you posted on all our development.

 

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The Anushca Lissen Trust

(Registration nr: 22497/2014)

 

Nedbank

Jakaranda (111 00500)

Cheque Account: 108 975 6666

 

Trust administrated:

Cremer & Strydom Attorneys

012 333 3257 of

082 889 7953

Contact us

Phone:

Hettie:  083 390 3691

 

Email:

hettie@ingwenya-fencing.co.za

annerie@ingwenya-fencing.co.za

info@anushcalissentrust.co.za

Lissencephaly

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